A BABY girl died less than a week after being diagnosed with a rare genetic condition which weakened her muscles and left her unable to fight off infections.
Little Heidi-Rae Wagstaffe was just five-months-old when she died after being diagnosed with spinal muscular atrophy (SMA) type one. The rare condition left her unable to fight off a bout of bronchitis and she died just six days after being diagnosed with the condition last month.
Her parents, Samantha Fay and Jason Wagstaffe, were left devastated and are now trying to raise money for a headstone, as well as awareness of the condition.
Samantha and Jason have chosen a Disney princess castle-themed headstone at a cost of £1,500.
They are also hoping to raise money for Bluebell Wood Children's Hospice, where Heidi was taken after she died, and for the charity Oscar's Rainbow which supports people whose children have SMA or have lost children to the condition.
** The full story is in the Barnsley Chronicle, dated January 23. **
